NPC Registration No: 2024/319828/08
About Us
FND – What Now? is a registered non-profit company (NPC) based in South Africa (SA), dedicated to supporting individuals diagnosed with Functional Neurological Disorder (FND). As a patient-led organisation, we understand the challenges of living with FND and are committed to providing resources, advocacy, and a strong sense of community for those affected.
Our journey began in 2022, when we identified a need for dedicated support and resources for FND patients. What started as a small support group quickly evolved into a recognised organisation with affiliations to other FND advocacy charities. Today, we continue to expand our reach, ensuring that individuals in South Africa (SA) navigating an FND diagnosis have access to reliable information, compassionate support, and a sense of belonging. We are dedicated to raising awareness, fostering connections, and empowering those with FND to move forward with confidence.
In 2024, we were officially recognised as a patient-led group by the Functional Neurological Disorder Society (FNDS), strengthening our credibility and visibility. The Western Cape Department of Health and Wellness has also acknowledged our work. For the first time in 2025, FND Day - celebrated annually on May 7th - will be included in South Africa’s National Health Calendar.
At FND – What Now?, we believe in building sustainable communities through collaboration with like-minded organisations. One of our key partnerships is with the South African Depression and Anxiety Group (SADAG). Since 2022, our support group has operated under SADAG’s umbrella, benefiting from its extensive network and expertise. SADAG is a registered Section 21 non-profit organisation with a board comprising psychiatrists, psychologists, general practitioners, and patients, all dedicated to improving the mental health and well-being of South Africans. The organisation offers support, advocacy, and education on mental health issues and coordinates a network of over 180 support groups across South Africa, including outreach groups in remote rural areas.
Our Mission
Our mission is to deliver vital public benefits and social services to individuals with Functional Neurological Disorder (FND) and related conditions in South Africa (SA).
Our Vision for Accessible,
Holistic Support
At FND - What Now?, we envision a future where every person living with Functional Neurological Disorder (FND) - regardless of where they are in South Africa - has access to compassionate, informed, and effective care. This includes individuals in both urban and remote rural areas, where resources and awareness of FND are often limited or non-existent.
A key part of this vision is the development of a dedicated rehabilitation centre that addresses the complex, multi-dimensional needs of FND. This centre will offer integrated care across medical, psychological, social, and functional domains - ensuring that individuals receive personalised support tailored to their unique journey. Our approach is holistic, combining evidence-based treatment, peer support, education, and community engagement.
Functional, Not Fictional
We recognise that FND doesn’t just affect individuals - it also impacts families, friends, and caregivers. As part of our holistic care approach, we are deeply committed to supporting the carers and loved ones who form the backbone of every person’s FND journey.
Caring for someone with a complex and often misunderstood condition like FND can be emotionally and physically demanding. That’s why we offer resources, educational materials, and dedicated spaces for carers to connect, learn, and find support. Whether it’s a partner, parent, sibling, friend, or professional caregiver, we believe their well-being is just as vital.
By strengthening the support systems around individuals with FND, we build a more compassionate, informed, and resilient community for everyone involved. This is our ongoing commitment: to expand our reach, build partnerships, and work alongside local communities to remove barriers to care. By creating a model of support that is inclusive, sustainable, and rooted in dignity, we aim to improve outcomes and quality of life for people with FND across the country.
